Showing posts with label fibromyalgia. Show all posts
Showing posts with label fibromyalgia. Show all posts

Friday, June 10, 2016

Power of Words

When you think of chefs you may not think about them as wordsmiths. Be sure that we are a group greatly entrenched in language.  We have a long history and our own lingo. This realm of terms, definitions, and understanding both describes and confines us. Chefs notoriously use language that some find offensive as a daily ritualistic release of tension.

The language of food is important and chefs rely upon it to convey clarity when speaking about a food request. Having said that, I am a chef who is rubbed the wrong way when people misuse a culinary term but expect to receive exactly what they have envisioned instead of what they have asked for to eat. If you asked for the Tomato Florentine soup, you can't be upset by the presence of spinach, for example, as Florentine means spinach in the kitchen.

Recently, I was on a mini-vacation and was looking for food fair. I called the near-by Cracker Barrel and asked if their were gluten-free options on the menu. They said yes, but when I arrived the menu did not have gluten-free pancakes or waffles nor biscuits, they brought an alternative menu that gave both nutritional information and pointed to some menu items as safe for my consumption. Offering me a bowl of oatmeal, fresh fruit, or steak and eggs, is not offering me options. I found it insulting that this was all that was offered and I didn't need them to tell me the fruit was gluten-free. By the way, the oatmeal was amazing and I had an order for dinner later on that weekend, but that is not the point. When I think of Cracker Barrel, IHOP, Original Pancake House, or any other breakfast spot it should not be difficult to make adjustment for alternative eaters, and shame on those who have the boldness to offer me fresh fruit as if I don't understand what gluten-free means.

Re-branding food items under new labeling is a funny thing these days. Every trip to the grocer has me laughing as the things that should be relied upon to be gluten-free have redesigned packaging to inform us of this new revelation of food category. I don't need anyone to tell me that unpopped whole popcorn is gluten-free, what's next, gluten-free water?

Language can bind us together with a common ground of understanding and communication but also can divide us with a loss of clarity or misunderstanding. For many consumers who purchase gluten-free items, not all of us must buy these items for health reasons like I do, but rather buy these items because the term is trendy and new-ish. I'd even bet there are some who couldn't accurately define the term but swears that it is bad for your health. No, no, no... It isn't good for my digestion, not everyone's. 

Sunday, April 24, 2016

Gluten-Free Pain In the Gut

If you are not already aware, there is a lot of buzz over the term Gluten-Free. As with many culinary or food fads, most people that are jumping on this bandwagon, often times do not understand what they are actively participating.

Just for your information, gluten is a protein that develops when wheat flour gets wet. Gluten can also be developed in a few other instances, but the vast majority of items that contain gluten, contain wheat flour. Wheat-germ, barley, and other foods that are manufactured with wheat, or in places where flour is also present, can contain gluten. Those of us who are gluten-sensitive or gluten intolerant, the consumption of this protein can create a large allergic reaction that can be very unpleasant all the way up to life-threatening.

I have fibromyalgia. When we began attempting to test for the source of my medical problems, the first test that my PCP ran was a food and respiratory blood allergy panel. I have known since high school that I have respiratory allergies, about 12 of them, so Spring usually finds me taking lots of antihistamines. Last year, before the Spring weather arrived, I had two emergency room trips for unusual swelling of my hands, feet, and facial features. I woke one morning and looked in the mirror and I resembled someone who had been in a prize fight the night before.

My doctors changed my medicines for my hypertensive condition, hoping that it had caused my symptoms. Then another trip to the hospital was required, and we changed to a third medication. At that point my PCP, ordered the blood panel. I had previously been diagnosed with my respiratory allergies by way of a pin prick test sub-dermal test, which at the time was the most accurate test available, but at no time did anyone test me for food allergies.

The results came back with interesting results, moderate reactions to shrimp and sesame, but the big surprise was that I had a large reaction to gluten. It wasn't life threatening, but it was something that was causing great distressed my system. So the next step was to test me for Celiac disease, a complete intolerance to the consumption of gluten. I do not have that condition, which is a immune disease, my testing revealed that of the 18 known symptoms that make up a fibromyalgia diagnosis, I had a large number of them. Not consuming gluten helps to lessen the severity of some of my symptoms but keeping away from this food product isn't easy.

The American diet is largely made up of lots of wheat products, especially fast foods, so eating from the vast array of restaurants available can be tricky when you can't eat wheat. No fried items because most have a flour batter, no sandwiches, no burgers, some instant oatmeal contain wheat flour as a binder, no baked goods primarily, nothing on a bun, many breakfast cereals have gluten, lots of sauces and soups are thickened with flour, see the problem?

As a chef, I have always cooked the majority of the foods eaten in my house, but on those occasions when ordering out is considered, I often am out of options. Since the testing, I watch what I eat so I can be more comfortable, but even being careful isn't always enough. I ate some McDonald's fries with my daughter and had a negative reaction, I am sure it had nothing to do with the 19 ingredient formula they use to make the fries.

Fibromyalgia is hard to diagnosis and the chronic pain associated with the condition can often be misunderstood by doctors. I was, at several different points in my life, given diagnosis that only spoke to one symptom or another, for example, I was told that I have irritable bowl syndrome, which could not be treated in 1990's, but it was only a part of what was going on. Gynecological pain, knee pain, headaches, swelling hands and feet, sciatica, dizziness, memory issues, muscle aches, and a few more, all were treated as a separate issue that would come and go from time to time. I knew it was bigger that this day's issues or the next. I suspected that there had to be a connection to all that I experiencing.

Day by day, I have to deal with this and be mindful of everything I eat and drink. I have had dreams of good toast and jam, a smothered pork chop in gravy, or my favorite type of cookie that has no gluten free alternative. There is a sea change happening on our grocery store shelves and more and more items have options for us who suffer. That's great but even that has a down side. In order to make thing gluten-free, a substitution of the wheat flour for others such as a rice flour is required, naturally. These flours do not act in the same way that wheat flour does, and additives are included to give a natural stretch when bread is rising, for example. They also are not produced as readily as other types of flour, so the associated costs are much higher. The same loaf of sandwich bread that can range from $0.99 to $1.79, for example, can cost you up to 6 or 7 times the price of the original. This is not only a pain in the gut, medically, but also it can hit your pocket very hard. I am glad to find some substitutions that do a great job both in taste and availability, while some alternatives are expensive and horrible tasting. I'd rather not eat a sandwich, as much as I miss them, than to eat one on horrible bread that tastes like an old kitchen spounge.

If you too are a sufferer that has to avoid gluten, like me, and has found a great substitute for wheat flour, please let me, and other readers know, as I haven't found one my self yet.

Thursday, April 21, 2016

Snap, crackle, and pop drop.

I was having a stressful but better than average mood today until I heard some very sad news. But before I go there, and I will, I just wanted to make a quick post about my fibromyalgia. I do not want this blog to be taken over by news on my condition, but felt this was worthwhile.

The last couple of weeks I have had a infatuation with cereal, milk, and bananas. I have not been able to consume milk products regularly since 2nd or 3rd grade. I would eat ice cream, well because it's ice cream, and just suffer any upset stomach or bouts with diarrhea that can with it. Now, since I have been on some new medications to control my symptoms, I have found, or reignited, my love of bananas, milk, and cereal. Add to this, a lot of the cereal manufacturers have changed their formulas to make their products gluten-free. Cheerios, for example, was using wheat flour as a binder in their old formula, but now it is certified gluten-free.

I woke this morning and eat yet another bowl of my new found treat. The ability to enjoy breakfast again is welcomed. I haven't been eating breakfast regularly in years as most of what we consider breakfast items were not well suited to eating them and then going to work. The upset stomach and having to rise earlier to fix something to eat, has never been good for me. Making something quick would always leave me with upset stomach, and the items that take longer to prep and consume would always leave me lethargic and uncomfortable.

This last year, or more, has had me making fruit and vegetable smoothies to both raise my metabolism and nourish me throughout the day. This regimen began on a smoothie cleanse and when it was over, I could really tell when I wouldn't fix one, that my body functions were slower and sluggish. So I would make an carry one everyday I was working, and that made it much easier to consume food while away from home, and not be searching the grocery store for something to eat, as the fast food joints had zero, or next to zero, gluten-free quick meals or snacks. On my days off, if I didn't get out the blender, I would be functioning very well, and would regret not preparing one for myself.

The marketplace is improving its options for gluten-free offerings and we sufferers of gluten allergies and Ceilacs disease thank you. The American diet is highly concentrated around wheat flour, it is in almost every well know product, even in ways that are harder to discern by just glancing over the nutrition labels.

Now for the drop.... As I was watching one of my shows on Hulu, a commercial break appeared, and I opened up my Facebook feed only to find out that my life-long favorite artist, hands down, Prince has died at the age of 57. I am heartbroken. The last couple of months we have lost the legends of music and radio that has been devastating to my generation especially, Phife Dawg, Doug Banks a king of radio broadcasting, last week, and now Prince. I grew up with Prince, danced on stage with him once at a show, I've heard every released track, sat in the fourth row center isle to see him perform, took fashion cues, watched his movies, memorized the lyrics and dance moves.

It's with a heavy heart that I say thank you to someone I have only been in physical proximity only once. Goodbye to a voice of my generation that moved us like none-other. And I send my tidings of peace to his weary soul.

Friday, April 1, 2016

Whinny Baby

Today, I am a whinny baby. What I mean by this is, I am not feeling my strongest. The to-do list is long and the money is short. My medical condition isn't helping. So I have a lack of drive and a deep desire to nap. This isn't a good look for chef.

When I had my full strength I worked hard, fiercely in fact. Work and went to school full-time, worked and raised my kids, worked to support my family, but now I feel less than half of my strength is gone.

Fatigue and pain are my daily companions. My war cries are barely a whisper these days. I am glad that I made a choice to teach. I like it and while the class can be mentally draining, I am not abusing my physical strength nearly as much I did to make others rich.

I have been missing social obligations due to a lack of energy and/or pain. Urgh... I am tired even writing this post. All that I can manage today is to get out some emails. Fibromyaglia wins today.... thus far.

Sunday, March 27, 2016

Argh.... what a weekend!

I make no excuses as to why I have slipped off of my daily post routine and I will get back on schedule very soon. Writing this regularly is not a habit of mine, I have tried time and again, but never really succeeded.

My fibromyalgia and my work schedule nearly put me back in the emergency room. It seems that when I attempt to feel better AND get some work done, like I once could, I end up in a flair up. In my case, the piece of me that is most effected is my digestion system. I avoid gluten, which helps a lot, and I try to always have a snack handy when I am away from home, but not all plans work to my good.

I am discovering what is referred as "fribro fog" where the memory is effected either by the condition or by the medications taken to treat the condition, which includes opiates. I made a mistake that I never ever do, I forgot to write down a client's order. Luckily, everything worked out but it isn't like me to handle things this way.

I, once again, am experiencing sleepless nights battling my aches and pains. Having gaps in memory isn't good at all. It's hard to keep your word, when you can't remember what was discussed.

In the realm of my teaching career, last week went very well. We had a successful site visitation, the high school kids did very well on their Cajun meal of blackened catfish, dirty rice, king cake and banana foster.

There was no podcast scheduled for this weekend and despite wanting to put one together, I did not push for someone to interview. I though about just posting solo but resting seems to be the order of today. Strength, courage, and wisdom. New levels to be yet achieved.

Monday, March 14, 2016

Environmental Chef

Every body, and every chef, relies upon quality ingredients to make a meal go from hum drum to zing pop. Without honorable farming practices, from soup to nuts, the chef cannot do what we do best.

Organic, non GMO, pasteurized, and fortified, all influence what our plates contain. Should chefs have a voice in the movement away from Monsanto tainted food, processed and persevered, items with more chemicals than food? Yes. 2015 was the first year on record that Americans spent more money on restaurants then at the grocery store. One can extrapolate that chefs are having a greater and grater impact on the health of the American citizen. Will it be left up to the corporations or to the craftsmanship of skilled chefs?

How we grow and treat food, or manufacture it, should be very important to everyone, but especially to us chefs. Life happens, change is the only constant, but preservation of the food sources we rely upon, not only for our trade, but for our very lives, must be a concern.

There is a farm to table movement in the culinary scene. I am not directly apart of that movement per se, as pastry doesn't rely as heavily upon farmed items as does the savory chef. However, as a fibromyaliga patient, I am rewriting my common eating practice to be gluten-free because the ingestion of gluten reeks havoc on my system.

Gardening, farm to table, diets, vegetarian and vegan, no matter your eating style how your food is treated before you purchase it is a huge consideration to be mindful of when purchasing. Environmentalist point to climate changes that are signaling some drastic shifts to our planetary harvest of edible products. We need to listen and learn before it is too late. We must take some responsibility for feeding ourselves. We have hired corporations to provide our nutritional needs by way of prepacked and process foods. We are confusing good for you and good tasting, they are not mutually exclusive. Many things that are good for us nutrition-wise can be very good tasting as well, however, if you are accustom to eating process food almost exclusively then your have trained your tasting ability to like those types of things, and therefore, being unaccustomed to the flavors of this items.
macrobiotics

Lots of kids in this new generation are trained to eat so many processed food items, microwave entrees, microwave popcorn, chips, dips, salsa, and super sticky sweet pastries that are just spun sugars. Sugar is a very addictive item with levels of dependencies very similar to heroine addiction. Frequently this diet is tied to the income of the parents. The lower the annual income of the household has a direct connection to the types of foods consumed. Often the families chose food stuffs with the primary focus on getting the cheapest and the most abundant items. While this type of consideration can be understood, it is the worst reaction or action that the shopper can do. I once was listening to a radio show and the host hit the nail on the head. He stated many things about budgeting, the most import of them was 'It is most important to understand when to spend and where to save. You should save on items that depreciate over time, like a car or clothing, but you should never buy food totally based on saving money. You should spend on food with the mindset of health benefit. The quality food stuffs you buy today will help to prevent you from being sick tomorrow and spending a high percentage of your money on medical bills.' I totally agree.

The environmental impacts of toxic waste, oil spills, water contamination, polluted air, are easy to understand in terms of their effects upon food resources. The global warming issues of storm changes, floods, drought, shifts in tides, changes in streams and rivers, will devastate our farming lands and methods. These issues are looming on the horizon but the current threats to our food supply are in the methodology of how we currently grow our food. The debates are all over the place, and the two loudest sides of the discussion are the organic food movement against the Goliath chemical companies, like Monsanto, who produce pesticides, herbicides, antibiotics for livestock. Add to that the factory farming practices that have changed how our dairy, eggs, and meat production/slaughter. The corporations like Monsanto, have always contended that the use of their products has increased yields and improved quality, and they maybe right, however, anyone that has ever had a garden of their own can tell you, the taste, variety, quality, of their harvest far exceeds anything offered in the grocery store.

Many chefs have established relationships with local farmers and livestock growers. This way the chef has the opportunity to understand, share, and ask for items that they would love to buy. Farm to table is more than a catchphrase, it is becoming a movement. Factory farming kills any uniqueness in preference of the most shelf stable and consistent items. We have breed, cross pollinated, and forced ripened foods to the point that they have the highest profit margins and ability to transport these items long distances. I find it to be much like corporate cooking. The corporate chef is often forced to produce the highest amount of items as quickly and consistently as possible which erodes the creative artistic aspects of the chef. Cookie cutter concepts in grocery stores, kitchens, and manufacturing, stomp out the uniqueness that happens when a chef is able to use their imagination. Can a chef create and repeat highly crafted items? Of course, we can, but when the total issue is all about designing in the most cost effective methods, the major ways to achieve this is with lesser quality items, machines, and factory items instead of handmade items. Kill the chef?

Revolutions have been fought over food issues over and over again. "Let them eat cake!" When the body of citizens examine their nutrition substandard, it becomes a big part of how they view their poverty or wealth. Can you afford to eat or feed your family? Can you afford to have quality foods on your table? Are you needlessly suffering from malnutrition and diseases? And what are you able to about it?

Friday, February 26, 2016

I don't IHop

Okay, I have had to go gluten-free in order to reduce my allergic reactions. This is connected to my fibromyalgia and the consumption of gluten makes my symptoms much worse. I am not happy about this for several reasons, gluten-free can be rather expensive, sometimes finding gluten-free items isn't always easy, but it is getting better, and my favorite thing to not be happy about is the taste of many offerings in this category. YUCKY.

I have been dreaming of eating toast with jam, or my favorite crackers, but the gluten-free bread that I have tried are not pleasing and 5 times the price of the regular bread. I keep thinking about bread making, cupcakes, and other such things that I enjoy in the original recipes. I have successfully converted several cookie recipes to gluten-free and I have tired a few times to make gluten-free bread and cornbread but haven't liked any of them yet.

I was recently pissed off when I had lunch at the local IHOP because this major chain has no gluten-free option on their menu. I am not understanding why not, as many of the smaller breakfast places have included my specialized foods already. This is a national chain of restaurants and I am sure introduction of this line of products can be done rather easily and without a lot of issues. I am also sure that I have not been the only one to have asked for this option in the last few years.

While I didn't mind eating steak and eggs, I was looking forward to a short stack only to be disappointed. Just this week, I ventured to a nice breakfast joint not far from the house, and there it was, a gluten-free option for pancakes and waffles. I ordered a gluten-free waffle topped with mango and quickly inhaled my meal with glee and didn't mind the extra $2 charged for the waffle.

There are so many things that I now have to be careful of eating in order to lesson my inflammation, hives, stomach aches, headaches, and muscle aches. I am not, not that I ever was, a big consumer of street foods and drive-ins, but now being forced to completely go without forever more, has me not so happy. My biggest heartache is that I can't eat burgers. A burger isn't a burger unless you have a nice bun. I don't like to pick my burger apart to avoid eating the bun. It isn't pleasurable and messy. Booooooo!

So IHOP corporate, please understand our gluten-free necessity. I shouldn't have to avoid your outlets because there is very little I can eat there and I don't want to sit across the table from someone only to watch them eat what I can't while my plate is empty, sipping on tea.

Thank you

Monday, February 22, 2016

Fibromyalgia and diet

Well, my fibromyalgia anyway. As fibromyalgia is a combined group of neurological responses, not everyone has the exact same experience. There are 18 conditions that in combination confirm a diagnosis of the syndrome, a patient must have a majority of them in order to be classified under this disorder.

Where does diet play a role in this disease?  Like so many other disorders, what you eat can be helpful or harmful. One of the effects of my disease is irritable bowel syndrome. I have been dealing with this aspect for about 20 years now. When this first was diagnosed, there was no treatment, and understanding what causes it is still not know but now there's medications to help regulate the movement and actions of the stomach and bowels. A blood panel revealed that along with the respiratory allergies that I have been dealing with since high school there's several food allergies including gluten sensitivity.

I am still learning all about what I am experiencing with my condition after spending a little over a year working with doctors to get at the root of what was going on. The full diagnosis is fibromyalgia, and a chronic knee pain syndrome.

It's a little more than 3 months since the fibromyalgia and knee pain syndrome diagnosis and I am struggling with getting to some sort of comfortable stasis. I changed my diet almost a year ago, gave up gluten, began to intake more veggie packed smoothies, and got regimented on the pill taking. I even had to change my career focus because being a professional production pastry chef is just too hard on me physically. I have always wanted to mentor and teach the next generation of cooks, but I believed it would have been under different circumstances.

I love what I do and I believe that I do it well. I am refusing to be undone by my aliments. I am too young to give up yet. Teaching, while often far more mentally taxing, is less physically demanding. Having trained all these years, I am reluctant to stop working, so I just re-purposed my skills.

These days I dream of eating toast and jam. The reason being is that I would rather do without than eat awful gluten-free bread at 6 times the price of regular. I have been very careful of my intake and modified my amount of activity. I need to add a good exercise routine soon. I have created a couple of great gluten-free desserts and plan on working on a few more. My stomach is at greater ease without gluten but I find it hard to avoid it if I find myself hungry away from home.

As the demand increases for gluten-free options the grocery selections are growing, but this is both good and bad. There are lots of people that are eating a gluten free diet that are not required to do so. It has become somewhat of a fad diet. I, on the other hand, don't have a choice.

I will continue to post on this subject from time to time.

Tuesday, January 26, 2016

Winter into Spring

Recently, I have been feeling the pull of a new season, in other words, I am so ready for Spring. In Chicago, the winter hasn't been bad this year, however, my spirit has been wanting to do some deep Spring cleaning and brush away the cobwebs in my brain.

I have often felt the need to purge and reorganize everything. This need is related to the seasons and often can be a deeper draw than my strongest food craving. Last year I was determined to garden but my health issues and my work schedule interfered. I was drained after teaching my high school class and didn't spend the time that I wanted to successfully grow anything. Hopefully, I will be able to maintain and fulfill my mental to-do-list this time around the sun.

As a chef and a mother, I have always enjoyed the bounty that only a garden can give. My grandmother always had a garden going in the backyard and I would help out. I have kept gardens myself as a adult but lately it has been much harder with my fibromyalgia and knee pain. I will give it a go within the next few months.

If you have never attempted to grow things, not even a flower bed, I encourage you to do so. You will never eat a tomato, for example, that tastes better than the fresh grown in your own garden. You are in control of this process when you garden. You can grow and harvest the foods you like best, you can control the chemicals used, you can monitor and effect change in your garden, and best of all, you lose no time from harvest to your plate.

I am determined to push past my limits and plant this Spring and force other members of my household to deep clean every inch of my house very soon, the first 60 degree days coming to our area will signal the beginning of our purging period.

Does anyone else feel this way?